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inventiveNectarine4087
2 6,166 M Moving Along 2
PathStep 1 Compassion hearts127 Forum posts3 Forum upvotes7 Current upvotes7 Age GroupAdult Last activeMay, 2024 Member sinceFebruary 11, 2024
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Caregiver for Mom and brother
Family & Caregivers / by inventiveNectarine4087
Last post
 April 24th
...See more I just wanted to share my story. I'm 20 and my mom has been living with multiple sclerosis for 12 years. It's been deteriorating gradually and she needs me here as a full time caregiver. It's random, some days she's fine others she can't get out of bed without help. My dad is very authoritarian and has all but mandated me to be her caregiver. We have looked at assisted living options and we cannot afford them near here. The state one is hundreds of miles away. Plus she doesn't always need it yet. So I feel like I have to assume this role.  As if that wasn't enough, my brother has severe autism and needs his own type of care and supervision which my mom and I share.  I just feel alone and stressed out a lot. My dad works away from home most of week. So each week is this cycle of worrying about him coming home, making sure there's nothing he's going to go off on me about, acting perfect when he's here, and relaxing as soon as he leaves. I've been making progress on not self harming or skipping meals. But I just struggle with managing emotions.  That's all I just wanted to get it off my chest. Thank you 
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